Today (4th October) in the Senedd, local MS Peter Fox spoke at an event hosted by the MND Association Cymru to support calls for non means testing and fast tracking of housing adaptations for people living with MND in Wales.
Motor Neurone Disease is a fatal, rapidly progressing disease that affects the brain and spinal cord. It attacks the nerves that control movement so muscles no longer work. It affects people from all backgrounds and sadly it has no cure.
In his role as MND Champion in the Senedd, Peter has repeatedly pushed the Welsh Government to do more to help people living with MND to access the housing adaptations that they need to live with dignity and remain in their own home. This helps to reduce pressures on frontline services, such as health and social care.
Despite progress on this issue, many people still cannot access all of the support that they need, with significant delays meaning some people have passed away before receiving adaptations. Such issues were directly raised with Peter during the event by people currently living with MND from across Wales and their families, with many telling him of the difficulties that they have experienced in getting help.
During his speech, Peter said:
"While the Government has supported improvements in this area for which we are grateful, not all local authorities have adopted these changes leaving people across Wales with MND struggling.
The MND Association has produced two reports that highlight the inequity of non means testing and fast tracking of housing adaptations for people living with MND in Wales.
Quite simply – things need to improve".
